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Summary

Proven advocacy leader with success championing state and federal access issues for arthritis and other chronic conditions. Highly skilled in development of advocacy networks and creating consensus among diverse stakeholders across patient, medical, industry and legislative groups to bring patient voices to the forefront. Innovative thinker able to leverage limited resources for success in advocacy and policy arenas.

Expertise

  • Broad and diverse knowledge of health policy and rheumatic disease space
  • Strong strategic, cross-functional planning and financial management
  • Strategic and collaborative engagement of conflicting stakeholder groups to achieve results
  • Strategic development of advocacy networks and influential relationships
  • Effective program development for health advocacy across multi-state territories
  • Skilled manager experienced working with indirect and direct reports as well as volunteers across an extensive geographic territory

External Advocacy Leadership Work

Prescription Drug Assistance Foundation (PDAF) (2012-present)

Governor-appointed board member for state-established non-profit. Successfully lobbied during 2015 session for change in state law to allow PDAF to serve underinsured as well as uninsured individuals.

Washington Life Science & Global Health Advisory Council (2015 - Present)

Serve at requests of Dept. of Commerce as representative of patient advocacy groups as the Council guides Governor's strategic plan for strengthening the life sciences and global health sectors.

INSPIRE Study Research Advisor (2014-present)

Selected to serve as patient advocacy professional for the University of Washington's Eugene Washington Patient Centered Research Institute (PCORI) Grant addressing inclusion of patient voices in research.

Patient Advocacy Leaders Summit (PALS) Board (2012-2015)

With other nationally-recognized patient advocacy professionals, provided field-based insight, set conference agendas for national and state-based programs and coached state organizations.

Work History

Jan 2014Present

Vice President, Advocacy & Public Policy

Arthritis Foundation, Great West Region

Direct advocacy and public policy activities for 8-plus states, delivering results consistent with Foundation policy in a region with challenging health policy initiatives.

  • Manage plan of work, goals, training, communications and compliance with state lobbying requirements.
  • Manage indirect reporting relationships with staff in nine states, achieving consistently top tier advocacy recruitment and increasing region's advocate base by 400%.
  • Effectively identify, assess, cultivate and place advocates from patient and provider backgrounds in appropriate opportunities to achieve legislative goals, including writing and coaching volunteers to testify.
    • Coaching of volunteer and field staff resulted in legislative wins in CO, ID, OR, WA and UT.
    • Facilitated formation of four state advocacy committees.

Drive legislative and policy efforts across the region, including direct lobbying in WA and OR.

  • Led patient advocate efforts on a three-year effort in WA resulting in passage of biosimilars legislation that ensures patient protections, establishing the Foundation as key player and bringing together diverse stakeholders to focus on patients' needs.
  • Built  relationships with insurance commissioners resulting in regulatory wins in Washington and Montana.

Cultivate regional network of advocacy resources.

  • Established strong relationships with the healthcare provider community to identify emerging policy issues, identify provider champions, and ensure referral of high-level advocates.
  • Forged a professional network of patient advocacy professionals across the region.
2011Dec 2013

Vice President, Programs

Arthritis Foundation, Great West Region
  • Revamped regional advocacy infrastructure and plan of work to significantly increase state legislative presence and built region-wide team of indirect reports to support plan.
  • Conducted state-by-state assessment of legislative, regulatory and lobbying compliance information pertaining to organization's efforts.
  • Hosted two patient advocacy health policy conferences, engaging legislators, regulators and over 100 patient advocacy professionals.
  • Conducted LEAN review of advocacy program, identifying and resolving workflow challenges by providing role clarification, job aids and training.
  • Managed indirect team of nine as well as three direct reports, ensuring the successful execution of annual plan of work for mission delivery and advocacy.
20052011

Director of Programs

Arthritis Foundation, Pacific Northwest Chapter
  • Managed community-based exercise programs, youth and family programming,  and other public education and outreach programs for Alaska, Oregon and Washington.
  • Led grassroots advocacy program for chapter, including two capitol days and initiating annual metrics tracking. Served on national work group for grassroots advocacy recruitment best practices.
20042005

Programs & Services Manager

Arthritis Foundation, Pacific Northwest Chapter
  • Oversaw outreach programs including community-based exercise programs, Juvenile Arthritis Family Camp including management of volunteers and intern.
20032004

Programs and Services Coordinator

Arthritis Foundation, Pacific Northwest Chapter
  • Planned and implemented first Juvenile Arthritis Family Camp in the Pacific Northwest and managed outreach programs for the chapter.
20012003

Programs Assistant

Arthritis Foundation, Washington/Alaska Chapter
  • Conducted outreach programs and trainings, managed databases and created communications for exercise, self-help and education initiatives.

Education

Bachelor of Arts, Sociology, Minor in Exercise and Sports Studies

Smith College